Tag Archives: Alpers syndrome

MONDAY MUSINGS

I couldn’t sleep last night, my mind could not shut off. I was thinking of all the things I need to do, and want to do. The things that worry me and the things that are out of my control.  As I tried unsuccessfully to sleep my good friend Brandy’s son Silas took his last breath. I woke up and my weight is holding steady at 170, but none of that matters today.

I first met Brandy when I was working in a restaurant in Palo Alto, and she was visiting so Silas her son could get treatment at Stanford University. We quickly hit it off, and I was honored to meet Silas as well. Their story of love inspired me through my many moves. Brandy-continued to really live life as she cared unselfishly for her terminally ill son. She was out doing fun runs with friends, seeing concerts, volunteering, and being the driving force for the wellness of her son. She was an optimist and an advocate. There was nothing she wouldn’t do for the care of her son. I admire her deeply and this blog post is dedicated to her. 

People have told me I’m strong and inspiring, and I’ve been through a few challenges in the last two years; but nothing like Brandy. I can fall apart at the thought of my cat being possibly ill. It was those thoughts, pet insurance etc that kept me from my beauty sleep last night. I woke to the news that Silas had passed away. All of a sudden losing a nights sleep to anxiety didn’t matter. My heart goes out to Brandy, my prayers for her and her son Jake as they navigate their new normal without Silas. They say when someone passes they earn their wings, I hope Silas is playing with the angels with abandon. In my heart Brandy has earned her wings too. There are angels who walk among us, and my friend Brandy is definitely one of them. So much love Brandy.